Genetic cancer risk, a topic that has gained increasing attention in recent years, is an essential component of understanding one's health journey. Advances in medical science have revealed that certain individuals may carry genetic mutations that significantly increase their susceptibility to cancer. Through genetic testing, we can uncover specific gene mutations, such as BRCA1 (Breast Cancer Gene 1) and FAP (familial adenomatous polyposis), that may considerably increase the risk of cancer. In this blog, we'll explore:
The significance of genetic testing
Who should get tested for inherited cancer risk
The importance of knowing your cancer risk
Embracing preventative measures, such as exercise, to stay ahead of potential health issues
Information on resources and support for individuals with genetic mutations
How exercise can play a pivotal role in mitigating the risk of cancer
The Importance of Genetic Testing
Genetic testing has revolutionized the way we approach cancer prevention and treatment. By identifying specific gene mutations associated with hereditary cancer syndromes like BRCA1 and BRCA2, individuals can gain crucial insights into their cancer risk. Knowing about such genetic predispositions empowers individuals to make informed decisions about their health and take proactive steps to manage their risk effectively.
Who Should Get Tested for Inherited Cancer Risk?
Individuals meeting any of the below criteria may benefit from genetic testing and therefore may benefit from a structured exercise program like what we offer at Live Long & Lift:
Several first-degree relatives (mother, father, sisters, brothers, children) with cancer
Many relatives on one side of the family who have had the same type of cancer
A cluster of cancers in your family that are known to be linked to a single gene mutation (such as breast, ovarian, and pancreatic cancers, which are sometimes linked to BRCA gene mutations)
A family member with more than 1 type of cancer
Family members who had cancer at a younger age than normal for that type of cancer
Close relatives with cancers that are linked to rare hereditary cancer syndromes
A rare cancer (in you or a family member), such as breast cancer in a man or retinoblastoma
A particular race or ethnicity (such as Ashkenazi Jewish ancestry, which is linked to a higher risk of BRCA gene mutations)
A physical finding that’s linked to an inherited cancer (such as having many colon polyps)
A known genetic mutation in one or more family members who have already had genetic testing
Lab tests of your cancer cells that show features that might be linked to an inherited gene mutation
What are Cancer Previvors?
For individuals who meet any of these criteria, they are known as previvors. Previvors are individuals at higher risk of cancer due to a proven inherited mutation linked to a cancer syndrome, a family history of cancer, or other predisposing factors. This group may not have had cancer yet, but the risk is a constant concern.
Embracing Preventive Measures
Once aware of their genetic cancer risk, previvors can adopt preventive measures to stay ahead of potential health issues. Emphasizing a proactive approach, medical professionals can work with those identified with genetic mutations to develop personalized care plans. These may include regular screenings, lifestyle modifications, and preventative interventions, like the addition of exercise into your daily routine to reduce the likelihood of cancer development or detect it at an early, more treatable stage.
Connecting with Support and Resources
Discovering that you have genetic mutations associated with hereditary cancer syndromes can be a life-altering revelation. It's natural to have a mix of emotions and questions about what comes next. Thankfully, you are not alone on this journey. A vast array of support groups and resources are available to help you navigate the complexities of your genetic test results and provide the knowledge, guidance, and emotional support you may need.
1. Psychological Support & Community Support Groups
Genetic testing results can trigger a range of emotions, from fear and anxiety to relief and hope. Psychological support, such as counseling or therapy, can help you navigate these feelings and develop coping strategies. Professionals specializing in mental health can assist in developing a positive outlook and fostering emotional resilience throughout your journey.
Along with professional support, joining a support group can be immensely beneficial as you process your genetic test results. Connecting with others who share similar experiences can create a sense of community and understanding. Whether online or in-person, support groups offer a safe space to share stories, exchange insights, and lean on one another during challenging times. These groups often provide valuable information about managing genetic risks and may be led by healthcare professionals, survivors, or experts in the field.
One such organization offering a variety of support options is FORCE - Facing Hereditary Cancer Empowered. Whether you have been diagnosed with cancer, just learned about your hereditary cancer risk or have known about it for many years, trained FORCE volunteers are available to offer confidential support. FORCE also has a Private Facebook Group and Message Boards to connect with that community. Visit here to learn more - Support (facingourrisk.org).
2. Counseling and Genetic Specialists
Seeking guidance from genetic counselors or specialists can offer clarity and peace of mind. These professionals are well-versed in interpreting genetic test results and can provide comprehensive explanations of what your specific mutations mean for your health. They can also help you explore preventive measures, address concerns, and discuss options for managing your risk effectively.
The Dana-Farber Cancer Institute developed one of the first clinical cancer genetics and prevention programs in the world. They can connect you with genetic counselors - specially trained licensed professionals who have earned a Master's degree in genetic counseling from an accredited program. Cancer genetic counselors specifically counsel patients about inherited cancer syndromes, the chance they might carry a gene in a form that confers increased risk of specific inherited cancer syndromes, the mechanics of genetic testing, the patient's chance of having an inherited susceptibility to cancer, and the implications of being found to carry or not carry a genetic risk for cancer. Find out more about their program here - Genetic Testing at Dana-Farber Cancer Institute - Dana-Farber Cancer Institute | Boston, MA.
3. Educational Resources
Empower yourself with knowledge through educational resources tailored to individuals with genetic mutations. Reputable organizations and websites offer comprehensive information about hereditary cancer syndromes, preventive strategies, and the latest advancements in cancer research. By staying informed, you can actively participate in decisions about your health and become an advocate for yourself and your loved ones.
In addition to FORCE - Facing Hereditary Cancer Empowered, another organization with a wealth of information is Helen Health. Helen Health is a digital health platform that connects you with the best cancer resources in the world. As a community member, you'll have exclusive access to thousands of top-tier genetic counselors, nutrition and fitness experts who can help you prevent cancer. They also have a marketplace of books and other resources about a variety of important topics like wellness, nutrition, equipment and supportive care.
4. Exercise and Wellness Programs
For previvors, exercise takes center stage in their health journey. Engaging in regular physical activity has been shown to have numerous health benefits, particularly for those predisposed to cancer. Exercise not only promotes overall well-being but can also reduce the risk of cancer occurrence and recurrence.
Benefits of Exercise for Previvors
1. Strengthens the Immune System
Regular exercise boosts the immune system, enabling it to better detect and eliminate potentially cancerous cells.
2. Reduces Inflammation
Chronic inflammation has been linked to an increased cancer risk. Exercise can help mitigate inflammation, promoting a healthier internal environment.
3. Supports Hormonal Balance
Hormones can influence cancer growth. Exercise aids in hormonal balance, potentially reducing the impact of hormones on cancer development.
4. Enhances Emotional Well-being
Managing stress and anxiety is crucial for overall health. Exercise releases endorphins, reducing stress levels and enhancing mental well-being.
5. Adds Lean Body Mass
Exercise contributes to the development of lean muscle mass, improving overall body composition and promoting a healthy metabolism, which is vital for reducing the risk of cancer and other chronic diseases.
6. Prevents co-morbidities
Engaging in exercise can reduce the risk of developing co-morbidities like heart disease and diabetes, which are associated with an increased risk of cancer.
Live Long & Lift is here to help previvors realize these life-affirming benefits of exercise by offering individualized exercise and wellness programs, one-on-one personal training, group training sessions and informational seminars. Contact us today to learn more.
Conclusion
Finding out that you have genetic mutations associated with hereditary cancer syndromes may feel overwhelming at first but remember there is a network of support and resources available to you. Connecting with others who have similar experiences, seeking guidance from genetic specialists, educating yourself about your risk, and prioritizing your emotional well-being are all crucial steps in navigating this path. With the support of these resources, you can embark on a journey of empowerment, resilience, and proactive health management.
To stay informed and receive updates on the latest advancements in cancer exercise and wellness, sign-up for our newsletters. Additionally, we invite you to take the next step towards transforming your health by scheduling a virtual consultation to discuss our personalized programs and services for pre-vivors. Together, we will empower you to embrace an active lifestyle that nurtures your body, mind, and spirit, helping you lead a life of vitality and well-being. Let us be your guide on this journey of hope, strength, and triumph over cancer risk. Let’s elevate your health, one lift at a time!
Resources
Disclaimer: Please note that Live Long & Lift is not responsible for the content or privacy practices of any external websites mentioned or linked to in this blog.